Becky Hosey had spent years caring for others as a physician assistant and chiropractor. But after she developed severe symptoms and was diagnosed with Sjögren’s disease in 2015, her understanding of living with a chronic health condition changed.

“I thought I understood my patients, but the truth is that I didn’t get it until I got it,” Becky said. Her experiences navigating barriers to medical care inspired her to become an advocate, sharing her story at educational institutions, professional conferences, and legislative meetings.

Living with Sjögren’s requires her to reconsider what she expects from herself each day. “It’s a negotiation process. You know, I have things that I want to do, things that I can do, and things that I end up doing. So I have to negotiate with my body every day,” Becky said.

For Becky, a Sjögren’s flare means her symptoms get worse. These symptoms include fatigue, pain, joint stiffness, swelling, and sometimes changes in her heart rate.

Over time, Becky learned that her body often warns her when she needs to slow down. When she notices those early signals, she might sit down for 30 minutes before returning to an activity.

“I think the most important thing is to just listen to your body and prioritize yourself,” Becky said.

Taking frequent breaks is one strategy Becky uses. “I take frequent breaks from doing activities, physical and nonphysical activities,” she said.

Stress management is another priority. Becky identifies stress as a major trigger for her. She meditates every day and practices mindfulness in simple ways, such as walking in nature, studying leaves, or watching birds at a feeder.

Becky also reaches out for help when she needs it. She might ask her spouse or friends to help with responsibilities, such as giving her son a ride.

“It took years to go through a grieving process due to the chronicity of my Sjögren’s symptoms, and the first thing that I had to do was to stop denying it.”

— Becky Hosey

When symptoms require medical attention, Becky said she contacts her doctor to discuss ways to manage the flare, including whether changes to her treatment are appropriate.

Adjusting to Sjögren’s was not quick or easy for Becky. “It took years to go through a grieving process due to the chronicity of my Sjögren’s symptoms, and the first thing that I had to do was to stop denying it,” she said.

Acceptance eventually became part of caring for herself. “The most difficult part of this journey has been learning to accept it and doing things to help myself,” Becky said.

That shift also affected how Becky views everyday experiences. She appreciates being able to make a sandwich, spend time with her son, take a walk, shower, drive, or travel.

“I do not take anything for granted,” Becky said.